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eISSN 2288-7105

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Phys. Ther. Korea 2017; 24(1): 51-60

Published online February 28, 2017

https://doi.org/10.12674/ptk.2017.24.1.051

© Korean Research Society of Physical Therapy

학령기 경직성 뇌성마비 아동 부모의 삶의 질과 아동의 삶의 질 및 기능과 일상생활활동 수행 수준의 관련성

이예슬1, 오덕원2

1국립교통재활병원 물리치료실,
2청주대학교 보건의료대학 물리치료학과

Relationship Among Parents’ Quality of Life, Functional Level, Performance in the Activities of Daily Living, and the Quality of Life in School-aged Children With Spastic Cerebral Palsy

Ye-seul Lee1, Duck-won Oh2

1Dept. of Physical Therapy, National Traffic Rehabilitation Hospital,
2Dept. of Physical Therapy, College of Health Science, Cheongju University

Correspondence to: Corresponding author: Duck-won Oh odduck@cju.ac.kr

Received: October 17, 2016; Revised: October 17, 2016; Accepted: December 8, 2016

Abstract

Background:

In cerebral palsy (CP), parents’ quality of life and rearing attitude are considered possible factors that influence patients’ quality of life, function level, and performance in daily activities. Despite these facts, little attention has been given to demonstrate a relation between these factors.

Objects:

This study aimed to demonstrate the relationship between parents’ quality of life, functional level, and performance in daily activities, the quality of life of school-aged children with spastic CP.

Methods:

This study included 24 parents of school-aged children with spastic CP. The KIDSCREEN-52 and World Health Organization quality of life (WHOQOL)-BREF questionnaires (including physical, psychological, social, and environmental domains) were used as research tools to assess the quality-of-life profiles of the children with spastic CP and those of their parents, respectively. In addition, the function levels and performance in daily activities of the children with CP were assessed by using the gross motor function measure (GMFM) and modified Barthel index (MBI). Correlation and multiple regression analyses were performed to clarify the determinants of the quality of life of the children with CP.

Results:

The KIDSCREEN-52 score correlated with the total score (r=.735, p<.01) and all domains of the WHOQOL-BREF questionnaire (physical: r=.542, p<.01; psychological: r=.690, p<.01; social: r=.568, p<.01; and environmental: r=.783, p<.01). In addition, significant correlation was found between the KIDSCREEN-52 and MBI scores (r=.411, p<.05), and between the MBI and GMFM scores (r=.427, p<.05). After controlling for age, gender, paralytic type, GMFM, and MBI, the WHOQOL-BREF score (R2=.621), particularly in the environmental domain (R2=.699), remained independently related to the quality of life of the children.

Conclusion:

These findings suggest that the quality of life of school-aged children with spastic CP can be influenced by the quality of life of their parents. This study provides useful information for future studies to investigate the quality of life of children with CP.

Keywords: Activities of daily living, Function, Quality of life, School-aged cerebral palsy

Article

ARTICLE

Phys. Ther. Korea 2017; 24(1): 51-60

Published online February 28, 2017 https://doi.org/10.12674/ptk.2017.24.1.051

Copyright © Korean Research Society of Physical Therapy.

학령기 경직성 뇌성마비 아동 부모의 삶의 질과 아동의 삶의 질 및 기능과 일상생활활동 수행 수준의 관련성

이예슬1, 오덕원2

1국립교통재활병원 물리치료실,
2청주대학교 보건의료대학 물리치료학과

Received: October 17, 2016; Revised: October 17, 2016; Accepted: December 8, 2016

Relationship Among Parents’ Quality of Life, Functional Level, Performance in the Activities of Daily Living, and the Quality of Life in School-aged Children With Spastic Cerebral Palsy

Ye-seul Lee1, Duck-won Oh2

1Dept. of Physical Therapy, National Traffic Rehabilitation Hospital,
2Dept. of Physical Therapy, College of Health Science, Cheongju University

Correspondence to: Corresponding author: Duck-won Oh odduck@cju.ac.kr

Received: October 17, 2016; Revised: October 17, 2016; Accepted: December 8, 2016

Abstract

Background:

In cerebral palsy (CP), parents’ quality of life and rearing attitude are considered possible factors that influence patients’ quality of life, function level, and performance in daily activities. Despite these facts, little attention has been given to demonstrate a relation between these factors.

Objects:

This study aimed to demonstrate the relationship between parents’ quality of life, functional level, and performance in daily activities, the quality of life of school-aged children with spastic CP.

Methods:

This study included 24 parents of school-aged children with spastic CP. The KIDSCREEN-52 and World Health Organization quality of life (WHOQOL)-BREF questionnaires (including physical, psychological, social, and environmental domains) were used as research tools to assess the quality-of-life profiles of the children with spastic CP and those of their parents, respectively. In addition, the function levels and performance in daily activities of the children with CP were assessed by using the gross motor function measure (GMFM) and modified Barthel index (MBI). Correlation and multiple regression analyses were performed to clarify the determinants of the quality of life of the children with CP.

Results:

The KIDSCREEN-52 score correlated with the total score (r=.735, p<.01) and all domains of the WHOQOL-BREF questionnaire (physical: r=.542, p<.01; psychological: r=.690, p<.01; social: r=.568, p<.01; and environmental: r=.783, p<.01). In addition, significant correlation was found between the KIDSCREEN-52 and MBI scores (r=.411, p<.05), and between the MBI and GMFM scores (r=.427, p<.05). After controlling for age, gender, paralytic type, GMFM, and MBI, the WHOQOL-BREF score (R2=.621), particularly in the environmental domain (R2=.699), remained independently related to the quality of life of the children.

Conclusion:

These findings suggest that the quality of life of school-aged children with spastic CP can be influenced by the quality of life of their parents. This study provides useful information for future studies to investigate the quality of life of children with CP.

Keywords: Activities of daily living, Function, Quality of life, School-aged cerebral palsy

Fig 1.

Figure 1.

Study diagram.

Physical Therapy Korea 2017; 24: 51-60https://doi.org/10.12674/ptk.2017.24.1.051

Table 1 . General characteristics of children with spastic cerebral palsy and their parents (N=24).


Table 2 . Correlations of all domains of the WHOQOL-BREF, KIDSCREEN, GMFM, and MBI (N=24).


Table 3 . Linear regression analysis for predicting the quality of life in school-aged children with cerebral palsy.